It is over two months since The Roberto Carcelen Foundation decided to extend our mission statement reach, and add Parkinson’s Disease research to our charitable efforts and we are underway!
After successfully meeting with the directors of the Peruvian Institute of Neurological Sciences (INCN). The Roberto Carcelen Foundation is currently supporting the Peruvian Institute of Neurological Sciences (INCN) on data research. We have started processing years of INCN’s historical data on Parkinson’s.
The INCN operating since 1700 (319 years ago) is the main public health body regarding diagnosing and treating neurological diseases in Peru.
Currently, we are working on implementing the following:
– Data collection. Digitize all the unstructured physical data.
– Standardize the diagnosis with universal PD protocols.
– Stream the data patient collection via a secure client application build on a decentralized permission network to ensure data integrity, log history immutability. This application will be used by the INCN doctors and nurses to enter the data digitally via INCN hardware connected to the intranet.
– Data analysis to find useful information that will support decision making, serve patients and medical research.
Expectations of this data research:
- Determined the socioeconomic variables of the PD sufferers in the region.
- Understand causes, risk groups, early symptoms, treatment response, disease progression.
- Determined incidence by location affected by pollution of resources or other stress factors.
- Define other types of Parkinsonism triggering the onsets.
- Standardize the diagnosis with Parkinson’s Disease universal protocols